In the Coquitlam
clinic there were 30 children a day getting treatments. I met two
children who had been seizuring all day long and both completely
stopped with HBOT even though the parents had taken them off all
medications. A seven year-old Canadian boy, Brett could walk, but
had such low tone in his hands he could not even hold a crayon.
After HBOT, his favorite thing to do was to color. A five year old
French Canadian girl walked alone for the first time in the waiting
room as we all applauded. Nineteen year old Adam from Texas not only
got more relaxed and responsive, but his severe psoriasis almost
disappeared! Two year old, Mitch, who was a shaken baby from
Minnesota scooted off his blanket for the first time since his
injury and stopped seizuring totally.
In July 1999,
Dr. Neubauer, a pioneer in treating off-label with HBO, had The
First Symposium On Hyperbarics and The Brain Injured Child in
Florida and parents came from all over. This gathering fueled our
excitement. Listservs started and parents shared their children's
improvements and others joined wanting to know more. At the
symposium we met a man, Tom Fox, from Alabama who ran a
free-standing Hyperbaric Wound Care clinic and he was so touched by
what he saw, he offered five of us free treatments if we would come
to Alabama. To his surprise a few weeks later we were all on his
doorstep.
While there I
told Tom if he could bring a mobile chamber to Wisconsin, I would
help him find interested parents to bring their children for
treatments. For fear of having the FDA stop us, we parked the unit
on an Indian Reservation outside of Green Bay. Because so many
parents in Wisconsin were interested in HBOT we had no trouble
finding willing parents. Billy's mother drove 1 ½ hours one way to
get the treatments. Billy has a Chromosome 9;11 Balanced
Translocation and is Autistic and had very crossed eyes. His mother,
Lynette said because of his sensory issues, he would never wear a
hood and she had trouble getting him to go in the chamber for the
first treatment. After one treatment, Billy's eyes straightened and
after seven treatments they were permanently straight. He became so
much calmer and loved crawling in the chamber. Billy would try and
put his own hood on even before we were at pressure.
Another man from
Oklahoma, Mike, bought a mobile chamber because he had a niece with
Cerebral Palsy and a sister who had a stroke. He also brought his
chamber to Wisconsin. Now Jessica and many more children in
Wisconsin were able to get HBOT on a regular basis without having to
travel.
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